Conference · 2025
Moving Forward
Our 2025 international conference brought together leading clinicians, researchers, patient advocates and families for a weekend of talks, panel discussions and connection in Derry.
Amyloidosis Ireland
Campaigns
From our first conference in Donegal to a landmark book and national awareness days, every campaign has brought amyloidosis further into the light.
Conference · 2022
Emerging from the Shadows
Ireland's first amyloidosis conference — held in Gweedore, Donegal — brought clinicians, patients and advocates together for a historic day of shared knowledge and hope. A short documentary, starring Daniel O'Donnell, was filmed on the day.
Book · 2022
Donegal Amy
Written by Rosaline Callaghan, Donegal Amy is a mix of memoir, geography, history and science covering forty years of living in the shadows of hereditary ATTR amyloidosis Thr60Ala — a rare disease with deep roots in north-west Donegal.
Awareness day · 2021
World Amy Day 2021
On World Amyloidosis Day 2021, well-known Irish figures — including Daniel O'Donnell, Colin Farrell, Brendan Gleeson and Pearse Doherty — lent their voices to help raise awareness of amyloidosis across Ireland and beyond.