Amyloidosis Ireland Conference 2022
Emerging from the Shadows
Ireland's first amyloidosis conference, bringing together clinicians, patients, families and advocates from across Ireland and beyond.
About the conference
A historic first for amyloidosis in Ireland
Our theme — Emerging from the Shadows — reflected the rising hope of new and emerging treatments for a previously untreatable condition. Our mission was to share awareness and information across the medical community and wider public.
The conference was international in scope, bringing together patients, consultants, surgeons, doctors, nurses and other healthcare providers.
Documentary
Emerging from the Shadows
Starring Daniel O’Donnell, conference speakers and Amyloidosis Ireland advocates, this short documentary was filmed at the conference to raise awareness and bring the community together.
Speakers & talks
Meet the speakers — watch the talks
Each speaker’s conference talk is available to watch on YouTube. Click the link beside any speaker to open the video.
Internationally recognised expert on amyloidosis, involved in major gene-silencing trials and the first trial of in-vivo gene editing using CRISPR-Cas9 technology.
Internationally recognised for work in ATTR amyloidosis and inherited peripheral neuropathies; past President of the Association of British Neurologists.
Specialises in heart failure and cardiac transplantation; extensive experience with cardiac amyloidosis and Irish ATTR patients.
Main areas are imaging, heart failure and amyloidosis, based at the Western Health & Social Care Trust.
Runs Peripheral Nerve & Neuromuscular Clinics and co-directs the National Ataxia Clinic; subspecialty interests include inherited neuropathies.
Involved with many Irish ATTR patients; contributed a medical submission to the HSE supporting the introduction of Patisiran in Ireland.
Completed a PhD in neuromuscular channelopathies; spent a year at the Centre for Neuromuscular Disease, Queen Square, London.
President of the Amyloidosis Alliance, covering the majority of amyloidosis patient support organisations worldwide.
Orthopaedic surgeon diagnosed with hATTR amyloidosis; involved in the original Patisiran trials and advocates tirelessly for UK patients.
Also involved with Foyle & North West Rare Disease Forum, providing support and advocacy for people with rare diseases in the North West.
Photos
Conference photos
Supported by
Our funders and partners
The 2022 conference was made possible through the generous support of our funders and partners.
2025
See our 2025 conference
The second Amyloidosis Ireland International Conference — Moving Forward — took place in Derry in June 2025.